Bureaucrats Making Health Care Decisions, Part II.

This is why I am angry:

I evaluated a man in the emergency room. His wife, tired and stressed out, had brought him to the hospital for care.

They were both young twenty-somethings. They met in high school and started dating shortly thereafter. Following graduation, he conferred with her father and obtained his permission to ask for the young lady’s hand in marriage. She immediately squeaked yes! and less than a year later, they wed in holy matrimony. He worked in construction; she worked as a secretary. They were trying to save money to start a family. Neither one had health insurance.

The nurses told me that the man was unwell: “He’s really got problems.”

He was sitting on the gurney, his left hand over his left ear. A tired blue tee-shirt covered his stocky torso. He wore faded blue jeans that were a bit too long for his legs. Around his right wrist was a small, grey watch with a plastic band. He was probably four weeks overdue for a haircut. When he rubbed his right hand over his chin, the soft sound of his facial hair bristling against his skin crept out from underneath his stubby fingers.

After introducing myself and orienting them both to the interview, I asked, “What brings you to the emergency room?”

He looked up towards the ceiling, his lips muttering silent words. Both his wife and I watched him, waiting for his response.

His eyes eventually darted to my face and he simply replied, “I need to get this lump surgically removed from my chin.” He looked up again, muttered some more, and added, “God says it shouldn’t be there.”

I felt my heart sink.

“You have a lump on your chin?”

He looked up and silently mumbled something.

“Yes.”

“How long has it been there?”

More muttering. His gaze moved from the ceiling to my face.

“About nine weeks.”

He flattened his left palm against his ear and added, “It’s about the size of a cantaloupe now.”

I looked at his chin. Nothing about it resembled a cantaloupe.

The interview quietly unfolded. Things started to change about nine weeks ago. He learned that he was the Emperor of Microsoft. Satellites in space were tracking his movements through his cell phone and communicating with a worldwide network of Microsoft computers. The lump on his chin was alternatively a mark of royalty and a potential manifestation of infection. God had directed him to start building an ark and to take two types of all types of electronics on board.

He looked up again.

“I notice that you keep your left hand over your left ear. Why is that?” I asked.

“Satan is on my left,” he answered matter-of-factly—after conferring with the ceiling. “I can ignore him better if I cover my ear.”

His wife quietly picked at her fingernails.

When the interview with him drew to a close, he spontaneously commented, “I know I’m not acting the same way I did nine weeks ago.” He paused, looked up. “I can’t tell the difference between reality and fiction.” He paused again. “God tells me that this is the case.”

I nodded. He knew.

His wife then spoke in a hushed voice about his slow unravelling over the past few months. First were the references to God, then the consultations. His constant efforts to recruit other workers to help him build an ark resulted in his termination from construction. He started to barricade himself in the bathroom to test the water resistance of various materials. He turned on all the faucets in the apartment to flood the floors to model the ark that he had yet to build. Sometimes he declined to eat, as God would provide all the sustenance his body required.

“The mental health professionals have seen him three times,” she commented, referring to the sole agents in the state of Washington who have the power to involuntarily hospitalize people for psychiatric reasons. “They told me all three times that he’s unwell, but he’s not unwell enough. They said he hasn’t been a danger to himself or to anyone else, even with all the flooding and terrible things he’s said to his co-workers when they refused to help him build the ark.”

She sighed.

“He’s refused to see a doctor up until today. I don’t know what happened today—he was out walking along the waterfront—and when I asked him if he wanted to get help today, he said yes. This is why we’re here now.”

“God tells me that I’m not the same person I was. I think God is right. God likes doctors and wants you to help me today.”

I looked at him, completely uncertain what to say. However, we were all in agreement—a voluntary hospitalization seemed appropriate.

For patients who lack health insurance, one must obtain authorization from the county to voluntarily admit a patient to the hospital for psychiatric reasons. (This may also occur on other services, but I can guarantee you that no other resident or attending from those services is required to make these types of phone calls.) The screener gives authorization for the county to pass the bill from the hospitalization onto Medicaid to pay for services.

The screener asks a multitude of questions to the person who evaluated the patient to assess if the patient warrants hospitalization. Generally, patients are admitted if the clinical history supports that the patient is in imminent danger of hurting himself or someone else (where “imminence” is highly subjective and has little inter-rater reliability). Furthermore, if there is evidence that the patient has not adhered to treatment recommendations on “less restrictive” terms (e.g. outpatient care, follow-up appointments, etc.), this bolsters the case for inpatient treatment.

“I don’t see enough support to hospitalize this patient,” the screener told me. I’ve spoken to this particular screener before in the past and knew that he was sympathetic to my plea. “You haven’t told me anything that suggests that he is about to hurt himself or anyone else. However, I am going to consult with the supervising psychiatrist and get back to you.”

I waited. I was not optimistic. Yes, it was true: The patient wasn’t endorsing any suicide or homicide risks. The patient, however, was also remarkably disorganized: His (mis)perceptions of reality were directly affecting his behavior and, if no interventions occurred, his condition would only worsen.

This man and his wife were amenable to receiving help now to improve his function.

I didn’t pick up the phone on the first ring. I wasn’t hopeful.

“I cannot authorize this hospitalization,” the screener informed me. “Less restrictive options must be explored.”

When I shared this news with the patient and his wife, they both stared at me. She was shocked. His facial expression was completely blank—as is consistent with people who are psychotic.

“What?” the wife exclaimed. “Are you serious?”

Yes, I thought. Even though he’s psychotic, he’s not psychotic enough for hospitalization. Even though he’s flooded your apartment where electricity runs alive and free, he’s not unwell enough for acute intervention. Even though he’s barricaded himself in the bathroom and declined to eat due to dictums from the divine, he hasn’t harmed himself enough to warrant mental health care.

Yes—even though both the patient and his wife are requesting for help now, they cannot receive it because no one can pay for it.

Yes, only when he’s injured himself—only when there is documented proof that he has (inadvertently?) electrocuted himself or his wife—can he receive services. Only after he’s become so psychotic that he antagonizes other people to the point that they physically assault him is when he finally deserves care. Only after he’s stopped eating and drinking for a week and falls into delirium is he worthy enough to have money spent on him.

Never mind preventing morbidity or mortality as soon as possible. Let’s punish the people who are actively seeking care by withholding it from them because someone who has not evaluated the patient directly deems that they are not sick enough. Let’s only extend services to those people who may have nearly killed themselves or someone else.

Yes, I get it—everything has a price. We can’t just give free care to everyone. People argue about the costs of healthcare all the time. I get it.

What price are you putting on a human life? Are psychotic people worth less than people who are not? Does it really save any money to offer acute care to someone who is voluntarily asking for it in contrast to acute care that occurs after a potential fatality? Just what message are we communicating to people who have mental health conditions? That they’re not worth preventative care? That they’re just not worth it, period?

Is the investment of a voluntary psychiatric hospitalization—which also includes (1) establishment of health care benefits, (2) education and support resources, and (3) connection with outpatient mental health services to help prevent future hospitalizations—really unreasonable? What costs more: a voluntary psychiatric hospitalization or a medical hospitalization following a significant medical or surgical injury? (Think ICU, all the various nurses, physicians, ancillary staff, the supplies used for medical interventions….)

How can we withhold appropriate care from people who are appropriately requesting for help? Why are the opinions of evaluating physicians deemed inferior to those working for the financial establishment?

How can we as physicians ever expect our patients to trust us to provide appropriate care for them when we are essentially limited in our abilities to offer appropriate interventions?

How is this okay?


This story has a happy ending. I conferred with an attending who, in his wisdom, helped me to reframe the above arguments. I contacted the screener’s supervising psychiatrist and appealed the decision. I was able to obtain authorization for the hospitalization. We were all relieved.

“Thank you,” the wife gushed, the relief apparent in her face and body. She extended her hand, eagerly grasped mine, and shook it vigorously.

After looking up and recupping his hand over his ear, the patient said, “Thank you. God thinks this is the right decision.”


4 Sep 2007 |



14 comments »


I never knew psychosis (is that the right term?) could set in so quickly. And although you wrote this while angry Maria, it doesn’t come off as angry. It’s actually lucid–that’s quite a remarkable ability to have. Thank God for happy endings.

Comment by yaser | 4 Sep 2007 @ 9:42pm



“I don’t see enough support to hospitalize this patient” is something I have heard many, many times.

“What?” the wife exclaimed. “Are you serious?” is something I’ve said myself just as many times. As well as asked the same question “How is this ok?” to only get a shrug of the shoulders in return.

But this: “I contacted the screener’s supervising psychiatrist and appealed the decision.” Those words got to me. God only knows how I had wished on so many occasions to hear something like that. All of the times that I heard “There’s nothing else we can do.” That one single sentence shows just how caring you are both as a doctor and a person.

Thank you so very much. It’s great to know that somebody out there is willing to go just a bit further to do the right thing.

Comment by Jesse | 4 Sep 2007 @ 9:55pm



Thank god you finally god the system to respond. It’s so frustrating…

I hope he does well.

Comment by tbtam | 5 Sep 2007 @ 3:47am



I am reading this after reading an article in my local newspaper on Sunday that a major university hospital (I work for them and they shall remain nameless but the paper was the Phila Inquirer) is now setting up “luxury” suites for folks who want better than standard care. The surroundings are plush and the food is good and the whole family is taken care of. The first made me insensed and reading your post and that in tandem brings me to despair. How in good conscience can we live like this? I would vote for almost anyone who could come up with a good health care plan for everyone, not just the rich.

Comment by donnalee | 5 Sep 2007 @ 5:22am



Good job. Good on you for following up and helping this man.

Comment by Bardiac | 5 Sep 2007 @ 6:23am



I’m Canadian. Here, we all have health insurance. Is it a perfect system? Far from it. But it saved my life when I was a few steps further along than your young man there. I didn’t have to wait for someone to OK things for me to get treatment. It began immediately.

I fervently hope, and often, that your system will change to become more inclusive, that your government(s) realise that we owe an obligation to look after each other.

You are a caring soul, Maria. You must be a wonderful doctor. You are doing good work and please never forget that, even on the darker days that must come your way.

Comment by bp_hockey_chick | 5 Sep 2007 @ 8:09am



I am lucky to have had health insurance my entire life, and even with it, I’ve had to fight the system several times to get the treatment I needed. In college, I had to wait two weeks to get an abscess the size of a golf ball excised from under my arm.

I almost bled to death on a table in the ER because they didn’t even bother to triage me when I got there, and if a nurse hadn’t happened to stick her head in the door half an hour later, I’d probably be either dead or brain damaged.

When I injured my knee, my insurance company wouldn’t authorize physical therapy at first - as I was able to walk around on it (in great pain, for short distances) they said I was “functional” and as such didn’t merit treatment. My doctor and I had to fight the company for a month to get the treatment approved.

Yet I am thankful every day of my life that I DO have those options, that I can go to my doctor and ask for treatment before things get REALLY bad, and I’ll likely get it without being bankrupted. I can’t imagine what it would be like to live without health insurance, and it is a crime that we have allowed the current system to exist as long as it has. And that people like you stick up for those without options until the rest of the country can get its collective head out of its ass, I am grateful.

Comment by Thane | 5 Sep 2007 @ 10:39am



I’m a Canadian too, but I understand the feeling of ‘not being sick enough.’ At one point I sat down with a psychologist and explained that I was getting worse, not better; that I had been asking for help politely and of the approved people for almost two years and had not gotten it; that I had started to seriously consider how to stage a suicide attempt that would spare my life but look serious so that I would be allowed to see a psychiatrist, because serious suicidality seemed to be the measuring-stick for deciding whether someone was allowed to be treated for major depression or not.

She looked at me thoughtfully and advised against this course of action on the grounds that I would be labelled borderline and be treated very badly. (Damned-if-you-do, damned-if-you-don’t time again.)

She made some calls and found someone who would see me. But it took years, and it took me threatening to pretend to do something that it was taking all my energy *not* to do.

I’m still angry about what happened to me. I’m also angry that this sentiment appears so rarely among the people with whom I am supposed to be cooperating in my care. Health care professionals will say brightly, Well it’s all right now, isn’t it? or Isn’t it great that you were able to get the care you needed!

I’ve never heard a health care professional acknowledge that it sucks to be in need of mental health services and have to advocate actively and forcefully on your own behalf precisely at the time you are at your most vulnerable.

Until now. Thanks, Maria.

I’m still angry though.

Comment by Alison Cummins | 5 Sep 2007 @ 10:43am



No ambulatory treatment?

Comment by Hagop | 5 Sep 2007 @ 11:06am



It sounds like your patient needed hospitalization, and I am glad you were able to obtain it for him. However, I think you were being a bit melodramatic when you said: “Yes—even though both the patient and his wife are requesting for help now, they cannot receive it because no one can pay for it.”
Other help is available- outpatient treatment, day program, intensive outpatient treatment, antipsychotic medication. You could have started him on a cheap typical antipsychotic and seen him back in the ER the following day if it took too much time to get him hooked up with services. I’m glad you were able to get the optimum treatment for your patient, but if you hadn’t been able to you still would have been able to help him.

Comment by Michael Rack | 5 Sep 2007 @ 2:52pm



We can’t just give free care to everyone.

Why the hell can’t we?? Sorry, but I’m Canadian, and it just seems completely ludicrous to me that people in America aren’t able to get the help they need when they need it… even though it happens a LOT down there.

All I know is that if you lived where I do and you were that far along in a psychotic episode, you’d definitely be admitted inpatient, no questions asked… even if you’d never harmed a single person.

Comment by Niika | 5 Sep 2007 @ 4:23pm



Thank you for writing about this. Too few people, especially in the media and among politicians, realize how often people who are VOLUNTARILY seeking psychiatric treatment are turned away, whether because of lack of insurance or lack of staff or beds, in both the inpatient and outpatient setting. Here in Virginia folks in the public system will wait a month or more for a first appointment with an outpatient clinician and people seeking voluntary hospitalization are either turned away or forced to convert to involuntary status to secure a bed, and yet all we hear from the media and our state legislators is that we need to force more people into treatment. What treatment I say? How can we force people into treatment that is not available and does not exist? Wouldn’t it make a whole lot more sense to try letting everyone who comes in voluntarily for psychiatric treatment get it promptly and easily and then see if we still have much of a problem left?

We need a system in which no one can be turned away for voluntary mental health services. I don’t understand why so many prominent psychiatrists and other providers and family groups aren’t pushing for that instead of pushing to erode confidentiality and civil rights protections.

Comment by Alison Hymes | 6 Sep 2007 @ 9:05am



Ugh. This is infuriating. We have a system that is designed to separate those deciding on care from those receiving it. Economic pressure creates a dispassionate, disembodied voice denying care. I’m glad there are a few docs like you around who go the extra mile.

[I’m obviously very behind on my feeds; sorry for digging up an old post.]

Comment by Ali | 22 Sep 2007 @ 5:07pm



[…] sorts of things makes me angry, but I can only imagine how I would feel if I was actually a part of the situation: Yes, I thought. Even though he’s psychotic, he’s not psychotic enough for hospitalization. […]

Pingback by Blendor » Health care = compassion - costs | 22 Sep 2007 @ 5:10pm




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