An Open Letter to a Man Who is Probably Now Dead.

Dear Sir:

I’ve thought about you recently. I’m not sure what prompted this lately, though I have noticed that I think about you every six to nine months.

I’m pretty sure that you’re dead now. There’s no way I can know this with any certainty, though I at least know that you have not died in the hospital. (I confess that I had looked up your hospital records several times within that first year after we met. I no longer do this because I don’t remember your first name, though I do remember your last name. That is how I addressed you.)

I was an intern and you were my patient. You had HIV. We met in the ER. If I recall correctly—the details are hazy now—it was an unceremonious greeting. You were too confused and what you said made little, if any, sense.

In fact, I hold only three snapshots of you in my head:

  1. The image of your brain. The greyscale image revealed a large tumor there. That mass explained just about everything about your clinical presentation: Your thick speech, difficulties with walking, and headaches.
  2. You nearly falling to the floor. I had walked into the room and you were staggering about, your hospital gown hanging wide open and your arms flailing as you teetered towards the bed. Lucky for us both, you regained most of your balance when you grasped my hand.
  3. You sitting on your bed. You invited me to sit down next to you.

Though I remember you for many reasons—the heartbreaking condition of your health, your attractive face (you weren’t handsome, though there was something about your dark eyes and uneven smile that was appealing), the way you shouted at all of us—the primary reason I recall now is that you taught me the importance of being present and genuine with patients.

You were sitting on your bed. I couldn’t understand the words leaving your mouth; the tumor was affecting the nerves that power the tongue and throat.

“I’m sorry—can you say that again?” I asked.

You repeated yourself.

“I’m sorry—I still don’t understand what you’re saying,” I said.

“I AM TIRED! TIRED! I JUST WANT TO REST!” you shouted, waving your arms around.

I recoiled, took a few steps back, and blurted, “I feel scared when you shout at me. Are you angry with me?”

You looked surprised, maybe a little hurt. You shook your head before mumbling, “No… no.”

And then you extended your hand. It was trembling.

At that moment, I felt shame: Did I make a poor assumption in believing that you were angry with me? Should I have kept my fears to myself? What was I hoping to accomplish with my remark? Was I alienating you?

Should I not have made the obvious explicit?

How I wished I could have taken those words back.

I instead took your hand. Your arm gently—though jerkily—pulled me to the bed. Implicit in your gesture was an invitation to sit down. So I did.

And we sat there. You held my hand while it continued to twitch and tremble. We may have had a conversation; I can’t remember. If we did, the content of the conversation was of little consequence, primarily because I still had problems understanding your thick speech.

I can’t know for sure what it is that you wanted to communicate to me. In my mind, I interpreted it as a sort of apology. Maybe you just wanted company. Maybe you were bored.

What you did not do, though, was punish me for my honest reaction.

Shortly thereafter, I rose from the bed and tried to remove my hand from yours. You would not release it.

“I have to go,” I said. “I have to see other patients.”

You mumbled something incoherent, though the expression on your face clearly communicated disapproval. Your fingers popped open and I was free.

The attending had told me later that your prognosis was extremely poor—maybe six months at most. In my selfishness, I didn’t want you to die—we had just met. You seemed like a nice guy. I wanted to see you in the future as a healthy, functional, nice guy.

And that’s why I checked your medical record thereafter.

I will never know if I ever crossed your mind after you left the hospital, though I highly doubt it. I was just one person in a long, white coat out of the dozens who you saw during your time in the hospital. You had other people in your life who reminded you of your days as a healthy young man and good friend, not as a patient with HIV who had a brain tumor.

Some people insist that doctors don’t think about their patients outside of work, or that they don’t care about what happens to them.

That you still remain in my memory and continue to affect the way I interact with patients is evidence otherwise.

Thank you,
Maria


10 Jan 2008 |



5 comments »


Nice blog. Got my vote for best literary weblog at Medgadget.

You’re losing to a guy in london…but hey, we managed to upend the Brits once. Can’t expect much more than that.

Maria says: Thank you kindly for your vote!

Comment by G.A. | 10 Jan 2008 @ 11:06pm



It seems amazing to me that you could imagine that he would NOT think of you! How often do you think he got a real human response from others, that even persisted over many minutes????? This insight into your behavior with this man says more to me (poositive) than any other of your writings.

Comment by Don | 11 Jan 2008 @ 11:13am



Beautiful writing Maria, the last few patient posts- wow!

Comment by pelican | 11 Jan 2008 @ 11:14pm



Beautiful, touching writing. Thank you for sharing it with us.

Comment by Kim-Son | 18 Jan 2008 @ 9:54pm



I’m a little behind on my blogs, thus the late comment:

This reminds me a little of a patient I took care of about a year and a half ago. He had a cutaneous T-cell lymphoma and wasn’t doing very well (even though it usually has a good prognosis). He was a very amiable man, with a good sense of humor. I found myself spending a lot of time talking with him during his admission. It was clear that he was lonely, and I wanted him to have some company, but I also genuinely appreciated all of our exchanges.

The afternoon that he was being discharged, he thanked me for being there and asked if he could cook me dinner. He wanted to make me lasagna with homemade garlic bread (and I tried not to imagine his skin flaking off into it as he kneaded it… he was shedding skin everywhere he went) and a salad. I felt uncomfortable because I didn’t think that was within the confines of appropriate behavior but I didn’t want to hurt his feelings either.

Clumsily I told him that I really couldn’t do that, but thanked him just the same. He appeared hurt, I think he had felt I was a friend (and I had felt that too, sort of, except for the limited nature of our interaction) and suddenly it seemed clear to him that I was not, almost as if our lengthy chats had been superficial on my part. He said that he just wanted to make food for me, and for our whole team, and that he would just drop it off one day and I wouldn’t even have to see him. I wished so much that I had been able to take back what I had said, since it now seemed that he wasn’t wanting me to come to his house but rather drop off food! I thanked him and told him that we’d love it, but the words I had said had already soured things. Maybe he had wanted me to come over, and this was his way of saving face. Or maybe I had just misunderstood him.

He never brought by food for us. I’ve thought of him frequently, and I can’t remember his name, only that we called him Bob Hope because of his sense of humor (he was laugh out loud funny). Recently I ran into the dermatologist who had direct-admitted him to our medicine service and asked about him. Since I didn’t know his name I had to describe him, but she knew exactly who I was talking about. He died sometime in the last year.

It still makes me sad to think about that final exchange I had with him.

Comment by misterbeans | 21 Jan 2008 @ 3:37pm




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